What we Do



We create opportunities for parent carers to meet others in a similar situation, talk about their experiences and provide emotional support.

Please come along to our:
– monthly coffee mornings
– family fun days (usually in August)
– Christmas events, e.g. film screenings, pantos
– outreach visits to schools and nurseries

Visit the Calendar for event information


We know that information about services for children with additional needs is often incomplete, out of date, or hard to find. It seems that every time we speak to someone, we learn something new. Any useful information we come across gets added to this website.


We arrange regular information events for parents. This includes our annual conference and workshops on a variety of topics, e.g. dealing with bullying, supporting children with speech and language needs, EHC plans, and more.

The Resources section of this website contains a wealth of information about key topics, such as education, childcare, short breaks, transition or direct payments, as well as contact details of local and national support organisations.

If you can’t find what you’re looking for, please get in touch and we’ll try to help.



We regularly ask parent carers for their views on a range of issues. This provides us with valuable information to feed back to decision-makers. The research is carried out in a variety of ways, including focus groups on specific topics, meetings of our Education, Health and Transport subroups, outreach visits to school and nurseries, and questionnaires.

We also recruit, train and support parent representatives to sit on strategic groups to voice the opinions and concerns of parents.

Please get involved by becoming a member and attending our events.