Parents have told us that the letters they receive from SENDSARS contain too much legal jargon and can be difficult to understand. We met with council officers to review them and make them more parent-friendly.
Were you told to just “wait and see” when you first raised concerns about your child’s development? We are working on a project to improve early diagnosis and support for children with neurodevelopmental conditions.
Do you feel passionate about improving local services for children and young people with additional needs and their families? Would you like to attend strategic meetings with the local authority and the health service to represent the voice of parent carers?
Every couple of years, we carry out a survey to find out what you, our members, think about our organisation. This helps us to improve the service we provide, and is very important for our continued funding.